Joint Projects

This is our Joint Project Page. It's a fantastic opportunity to help visitors understand the context and background of our latest work.  That L-W-O is passionate about Community Engagement because we strongly believe that by working with other groups, individuals, or organisations we can achieve so much more together to educate, inform, and raise awareness of lymphoedema.

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Community Engagement

PhysioPod UK

Share the amazing things customers are saying about your business. Double click, or click Edit Text to make it yours.

UK Lymphology Clinic

Share the amazing things customers are saying about your business. Double click, or click Edit Text to make it yours.

Patient Advocates in Europe

Share the amazing things customers are saying about your business. Double click, or click Edit Text to make it yours.

Community Engagement

In 2015 found that the language we used was often met with a hostile reaction the word 'exercise' was one word our members did not like.  Therefore, we changed to using the hashtag #getmoving

In 2020 The British Lymphology Society (BLS) launched their #everybodycan campaign.  I am thrilled to announce L-W-O and BLS started a joint initiative in July 2020 with a series of videos and information to show how we can all boost our lymphatic health by ...

#getmoving_everybodycan

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#everybodycan

Community Engagement & Unity

When I started my lymphoedema awareness journey I could never have imagined where it would lead.  I did not have a plan and my social media skills were non-existent. My intention was to understand my lymphoedema and, if I could help one person from experiencing the doom, I felt when diagnosed with a lifelong, incurable condition that would be a bonus.

Through my journey I have met some amazing people and in 2018 at the LSN Conference (Lymphoedema Support Network) I was introduced to Matt Hazledine. 

 

Little did I imagine he would contact me three years later to ask me if I would write a chapter for his book.  When I see my name acknowledged with all the other experts listed, I am truly humbled.

Our journeys started around the same timeline in May 2011 and Matt’s in June 2011 although our experiences with lymphoedema are quite different.  We share the same goals to raise awareness of lymphoedema through community engagement and unity.

How to LIVE BETTER with lYMPHOEDEMA

Meet the Experts

Book How to live better with Lymphoedema

In addition check out Matt's new website: Lymphoedema United

The website provides information and guidance from a panel of medical experts, along with a secure place where people living with lymphoedema can unite directly with others, product providers and organisations.